Prader‐Willi Syndrome Association | USA was established in 1975 to unite parents, professionals, and other interested citizens to enhance the quality of life for those affected by Prader‐Willi syndrome (PWS). The organization plays a crucial role in the PWS community by providing a platform for shared experiences, advancing research, promoting education, advocating for patient rights, and offering comprehensive support to individuals with the syndrome and their families.

With chapters across most states, PWSA | USA stands as the only national PWS supporith Prader-Willi syndrome t organization dedicated exclusively to assisting individuals w and their families at every stage of their journey.

Services and Programs

Support Services:

Emotional and informational support for families and individuals.

Assistance with accessing healthcare and educational resources.

Crisis intervention and management.

Education and Awareness:

Educational resources for families, professionals, and the general public.

Workshops, webinars, and conferences on PWS.

Advocacy:

Advocacy for policies and legislation that benefit individuals with PWS.

Collaboration with other organizations and stakeholders to promote awareness and research funding.

Research:

Funding and supporting research initiatives aimed at understanding PWS.

Promoting and disseminating research findings to the community.

Community Building:

Facilitating connections among families, caregivers, and individuals with PWS.

Organizing community events and support groups.